September Meeting!

The next support group meeting will be on September 7th at 1:00pm to 3:30pm at the Warwick Public Library, Small Meeting Room, 600 Sandy Lane Warwick, RI.

We will be going over information gathered during the EDNF Conference that was just held in Providence. We hope you can make it! I’m sorry I haven’t been putting up the meeting minutes on here, I know many of us aren’t always able to get to the meetings. If you have some web site knowhow or are willing to learn and would like to help please let us know!

There will also be a Pain Awareness Event on September 21st, 2-4pm at Miriam Hospital, Hurvitz Board Conference Room. This event is being put on by the US Pain Foundation.

Guest Speakers- George Pasquarollo, DO, FAAO “Prolotherapy and Platelet Rich Plasma”

JoAnne Leppanen RIPAC, Educational Briefing on RIPAC and Medical Marijuana Program in RI

Inspirational Speakers: Nicole Toscano and Bonnie Cunningham

Panel of Medical Marijuana Patients

TCAPP (The Coalition Against Pediatric Pain) and The RI Ehlers Danlos Support Group will also be at the event

Refreshments donated by Whole Foods

For more information about the US Pain Event please contact Ellen Smith 401-474-0115 or email

For more information about the upcoming EDS support group meeting contact Diane at, or Krista at