September is Pain Awareness Month

It doesn’t look like we will get a meeting over the summer. We do have a meeting scheduled for Pain Awareness Month in September:

September 6th RI EDS Awareness/Support Group Meeting 2pm-4:00pm – Warwick Public Library -Large Meeting Room, 600 Sandy Lane Warwick, RI 02886. September is pain awareness month; we will be discussing pain management options. Guest Speaker: Todd W. Ellison, MSW, LICSW, PARK VIEW COUNSELING, 430 Academy Avenue Providence, RI 02908 (401) 447-5952 will be giving a presentation: “Nurturing Healthy Relationships”.  Ellen recently heard him give this talk to the Arthritis group and was so impressed she asked him if he would speak with our group, we are so happy he said yes! Don’t miss it!

Also going on in September:

September 13th – 6th Annual New England Symposium-September 13-Best Western-Manchester, NH (10:00 am – 3:00 pm)Join us in New Hampshire on Saturday, September 13, for a one day educational symposium on Marfan syndrome and related connective tissue disorders. Drs. Hal Dietz, Thor Sundt, and Brad Tinkle are the keynote speakers this year. Topics include Marfan syndrome, Loeys-Dietz syndrome, Ehlers-Danlos syndrome, pain management, growing older with connective tissue disorders, preparing for surgery, applying for Social Security Disability, genetic testing, and more. Please mark your calendars. Registration coming soon. Cost:$35 per adult/$20 per child (6 to 17 years) before August 13, 2014. $40 per adult/$25 per child after August 13, 2014.Fee includes continental breakfast and snacks. Questions: Contact Rene Jones or Kaddy Ackroyd at More Information:

September 27th – The US Pain Foundation’s Annual Pain Awareness Event at Miriam Hospital – 164 Summit Ave, Providence, RI 02906 (401) 793-2500 More information to follow, contact Ellen Smith with questions:

If we do have a meeting I will send out an email and post here. If you want to get on the mailing list please email Krista:

Questions? Email