Monthly Archives: November 2014

HOLIDAY PARTY –  holidayflyer

December 7th Dysautonomia Diva’s Holiday Fair happening at Cardi’s Furniture Community Room, 999 Newport Ave Attleboro, MA 02703 (Handicap Accessible & Free Parking) RSVP to: DysautonomiaDiva@hotmail.com Local Organizations and groups will be on site, along with food, door prizes, a guest speaker, and more! We will not be having our RI EDS Support Group meeting this month instead we will have a table set up at this event, I hope you will join us!

 NEXT MEETING:

January 3rd RI EDS Awareness and Support Group Meeting2pm-4pm – Warwick Public Library Large Meeting Room 600 Sandy Lane Warwick, RI 02886. Special Guest Speaker Kathleen Kane, ESQ will be talking to us and answering questions about filing for disability.

 February  7th RI EDS Awareness and Support Group Meeting 2pm-4pm – Warwick Public Library SMALL Meeting Room 600 Sandy Lane Warwick, RI 02886 – Please note change for this month to the small meeting room. Unfortunately the large room won’t be available for Feb/March and we will be meeting in the small room for those months!

February 8th EDS New England/Massachusetts Support Group and MA Chapter of the Marfan Foundation Joint Meeting. When: Sunday-1 PM to 5 PM Where: Children’s Hospital in Waltham-9 Hope Avenue-Deveber Conference Room-Lower Level

We have exciting speakers booked into the spring! To stay up to date on current events, email krista@rieds.org and ask to be added to the email list. We also have a Facebook group found here: https://www.facebook.com/groups/RIEDSSUPPORTGROUP/

Exciting news from our friends at The Coalition Against Pediatric Pain! Here At Last: Family Summer Camp for Pediatric Pain Patients — Free of Charge!!! The Coalition Against Pediatric Pain (TCAPP), RSDSA, and the US Pain Foundation have partnered with The Center for Courageous Kids in Kentucky and have pooled all of our resources to create a camp for kids in pain. This will be a family camp that will take place at The Center for Courageous Kids in Scottsville, Kentucky from July 14-17th and is free of charge. It will be a time for families and kids that deal with daily pain to kick up their heels and have fun in a safe, accepting environment! For more about this and other things TCAPP is up to – www.TCAPP.org

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