We had a wonderful time today at the School Nurse Conference. Thanks to everyone who came out. Special thanks to Ginny Law for getting us the opportunity and working tirelessly to get us even more opportunities for community outreach! Thanks also to Krista Brack, Xantha McCartney, Jen Corneau and Christine Morphis for volunteering their time and resources to make this event so successful. It was an amazing event. They were very happy to have us and will let us know in the future of other opportunities for us to raise awareness! If anyone else has pictures we would love to see them!
Some resources provided to us for free from the Marfan Foundation and Healy Physical Therapy and Sports Medicine, Inc. We thank them both for their continued support!!
Other materials printed/provided by the Rhode Island Ehlers Danlos Awareness and Support group with assistance from Ehlers Danlos Syndrome Network C.a.r.e.s. , Inc., EDS Today, and the Ehlers Danlos National Foundation.
If you would like to help us continue to reach more people with our community outreach efforts we need help with our printing costs! If you would like to help us with the printing costs and other group activities there is a donate button to the right of the main page on our website (www.rieds.org). If you would like to donate by check or some other way such as office supply gift cards please contact Krista – krista@rieds.org. Currently all of our costs are paid for directly by our members, most of whom are too ill to work but give what they can to keep our efforts going, we could use your help!
http://www.marfan.org/
http://www.healyphysicaltherapy.com/
http://www.ehlersdanlosnetwork.org/
http://edstoday.org/
http://www.ednf.org/
