Come join us today at the Marfan Foundation’s Walk For Victory!

We will be joining the Marfan Foundation and the New England EDS group in this years Walk for Victory! I’ll be there around 11:30 wearing my EDS shirts and carrying a banner for the RI group, I should be easy to spot ūüėČ Here is the information that is up on the website for anyone looking to join us:


Salem Willows Park
167 Fort Avenue
Salem, Massachusetts

Registration & Check-in: 12:00 pm

Walk Start: 12:30 pm
Join us for our 2nd Annual Walk for Victory and help us raise awareness and advance our life-saving work. Grab a friend, join a team, or make your own team and get ready for some fun in the sun! Enjoy a mile-long leisurely walk with other affected families and friends and then celebrate with some snacks, music, and games!

Benefits for Walkers:
– Your own personal or team fundraising webpage
– Snacks, games, and DJ entertainment
– The chance to connect with others in your community
– Satisfaction in knowing that you are helping to save lives and improve the quality of life for the many thousands of individuals and families affected with Marfan syndrome and related disorders.

Additional Details:
– Your registration fee covers your entry fee into the walk and all food and activities
– Every walker that raises at least $100 will get an exclusive Walk for Victory t-shirt
– There will be prizes for Top Fundraisers


Early Bird Registration (through April 14) – FREE

Standard Registration (April 15 РMay 15) Р$10 per person

Walk Day Registration (May 16) Р$20 per person