UPCOMING EVENTS:
September 12th RI EDS Awareness and Support Group Meeting 2pm-4pm – Warwick Public Library SMALL Meeting Room 600 Sandy Lane Warwick, RI 02886. Special Guest speaker, Michael P. Healy PT, DPT, DOMTP, CPT, CSN, MBA, owner of Healy Physical Therapy and Sports medicine (with two locations in RI, East Providence and Cumberland) Dr. Healy has years of experience treating patients with connective tissue disorders and has many patients who travel from out of state, and even from outside the United States to be treated at Healy Physical Therapy and Sports Medicine. Dr. Healy will be talking to us about how physical therapy can be used to treat the whole body.
September 13th Joint Meeting of the MA Chapter and the EDS/NE MA Support Group. Where: Children’s Hospital Waltham 9 Hope Avenue Deveber Conference Room, 1pm-5pm.
September 19th –2015 U.S. Pain Foundation’s Pain Awareness Event. Where: Miriam Hospital 164 Summit Ave., Providence, RI Hurvitz Board Conference Room. When: SEPTEMBER 19, 2015 2-4pm. Registration is not required. GUEST SPEAKER: James P. Crowley, MD, FACP “Overview of how we got to where we are today with no effective oral opioids”. INSPIRATIONAL SPEAKER: Jamie Toscano. Along with speakers on alternatives to consider. For more information, contact: Ellen & Stu Smith (401) 474-0115 or email- ellen.smith2@gmail.com
September 26th – 6th Annual Marfan Foundation New England Symposium – Manchester, NH. 8:00 AM – 4:00 PM WHERE: Best Western Plus Executive Court Inn and Conference Center 13500 South Willow Street Manchester, NH 03103. Early bird registration ends August 15! $35.00 adults; $20.00 children (5-17) before August 15th $45.00 adults; $30.00 children (5-17) after August 15th– For more information and to register for the event: http://www.cvent.com/events/6th-annual-new-england-symposium-on-marfan-syndrome-related-disorders/event-summary-590c858a6e5d446d86d66d25056e15a6.aspx?i=fe369c55-0180-4eab-accd-ab85328ef7de
October 24th RI EDS Awareness and Support Group Meeting 2pm-4pm Warwick Public Library large Meeting Room 600 Sandy Lane Warwick, RI 02886. Dr. Petra Klinge from Rhode Island Hospital will be our guest speaker. She will be talking about EDS, Tethered-Cord and Chiari. Dr. Klinge is a local Chiari expert who has taken a special interest in patients with Ehlers Danlos Syndrome.
November 14th RI EDS Awareness and Support Group Meeting 2pm-4pm Warwick Public Library large Meeting Room 600 Sandy Lane Warwick, RI 02886. Local physical therapist, Kevin Muldowney will be our guest speaker. Keven will be talking to us about his new book, Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS. http://www.chronicpainpartners.com/physical-therapy-for-living-life-to-the-fullest-with-ehlers-danlos-syndrome/