Monthly Archives: September 2015

Marfan Foundation One Day Symposium Next Weekend

Next Saturday, September 26th 2015, is the 6th Annual New England Symposium on Marfan Syndrome & Related Disorders in New Hampshire. A full day discussion for patients, families, and healthcare professionals addressing managed/coordinated care for those affected by Marfan syndrome, Loeys-Dietz syndrome, Ehlers-Danlos syndrome and other related connective tissue disorders.

Krista Brack will be there representing the RI Ehlers Danlos Syndrome Awareness and Support group. She attended last year and had an amazing time. She will be staying at the hotel on site, anyone looking to connect with her at the conference should email her at Krista@rieds.org. Hope to see some of you there!

Marfan Event

 

 

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