Hello everyone! I hope you can make it this weekend for an exciting meeting led by Ellen Smith.

I’m currently recovering from ankle reconstruction and will not be able to attend the meeting but I know it is going to be a great one. If you have any questions about this meeting or anything else about the group or EDS please contact Ellen at or Ginny Law at I’ll be recovering this month and April but I’ll be back strong in May. You can still reach me here, it may take longer than usual for a response.


Saturday  March 26rd  2pm – 4:30pm

Warwick Public Library

Large Meeting Room

600 Sandy Lane Warwick, RI

Please join us this month as Ellen Lenox Smith leads a discussion on living life well with a connective tissue disorder. Ellen will be sharing with us how she and her service dog Maggie were matched and about the process involved with getting and caring for a service dog. She will also talk to us about self-advocating and becoming a medical cannabis patient in the state of RI. Ellen Lenox Smith has emerged as a leading voice for patients living with pain in Rhode Island. Mrs. Smith is a resident on a small farm in Scituate, Rhode Island with Stuart, her husband of 42 years. She is a Rhode Island ambassador for the US Pain Foundation and the Arthritis Foundation. Mrs. Smith is also co- director for medical marijuana advocacy  at the US Pain Foundation, staff writer for Pain News Network, and a board member of the Rhode Island Patient Advocacy Coalition (RIPAC). You can learn more about Ellen at her very informative website –

After this weekend our next meeting will be on April 30th 2016! Let us know what you are doing to raise awareness this May at or

Krista Brack