Next Meeting and upcoming events

Our Next meeting will be April 30th 2016. We are meeting in the IDEA STUDIO at the Warwick Public Library located at 600 Sandy Lane, Warwick, RI 02886 2pm to 4:30.

Upcoming Events!

April 30th RI EDS Awareness and Support Group Meeting 2pm-4:30pm – Warwick Public Library WE ARE MEETING THIS MONTH IN THE IDEA STUDIO! 600 Sandy Lane Warwick, RI 02886. Guest Speaker Special Guest Speaker: Belinda J. Harrison, MSPT. Belinda is a women’s health physical therapist. Belinda enjoys specializing in treating patients with diagnoses that include urinary or fecal incontinence, constipation, pelvic pain, and pre and postpartum pain or pelvic floor weakness. She believes that it is truly a blessing to provide education and personalized care to women to rebuild their confidence back in their bodies. Belinda will be talking to us about the anatomy of a woman – pelvic floor and core muscles and what a Pelvic Floor Physical Therapists treats.

May 7th POTS WALK and 5K Race Medford, MA 10am Benefiting Dysautonomia International – RI EDS will have a table set up at this event! Please come out in support and join us, if you aren’t able to walk we would love to have help at our table.

To join the RI EDS Team: go to to find out more about the event – We are still looking for volunteers for the day of to help out at the table. If you are interested, please contact

May is Ehlers Danlos Syndrome Awareness month, what will you be doing to raise awareness? Looking for ideas or materials to raise awareness this May? Email or Ginny

Thinking about raising awareness with the medical community? Ask your doctor if you can bring some informational flyers into the office. In High School or College? See if you can have a school event to raise awareness and/or $$ for EDS. Have a child in school? We have some great information for educators and school nurses. Looking for small ways to raise awareness all month long? How about a couple Tee-Shirts you can wear when you go out, you could put a bumper sticker on your car or if you’d rather have something you can wash off, why not decorate your car with one of those window markers you can buy at any craft store? You could be a moving bulletin of EDS information.

Know of an event where we might be able to set up an awareness table this spring/summer, we want to know about it! You can email, or come join the conversation on Facebook! Having trouble getting approved? Email our Facebook admin at

June 4th RI EDS Awareness and Support Group Meeting 2pm-4:30pm – Warwick Public Library LARGE Meeting Room 600 Sandy Lane Warwick, RI 02886.

June 11th Marfan Walk for Victory at Boston Commons SIGN UP