Summer News

Our next meeting will be on September 24th at 2:30 at the Warwick Public Library on Sandy Lane. Here are some other things going on in the area!

August 7th Dysautonomia Support Network Monthly Meeting Panera Bread: Panera Bread – 103 Taunton Street, Plainville, MA 02762 3-5pm


August 28th EDS New England Teens and Twenties Cookout – EDS Teens and Twenties (EDSers from age 13-29) group is having a cook-out August 28th 1-5pm at Rachel Stevens house in Cranston, RI. We’ll have vegetarian and gluten-free options, and we have one to two air-conditioned rooms available if someone has a POTS spell and needs to rest where it’s cool. Please contact Rachel on facebook or Email for the address and more information: Facebook Page:


September 17th US Pain Foundation Pain Awareness Event: Johnston Senior Center 1291 Hartford Ave, Johnston RI. 2-4pm Speakers: Jessica Papa PT;DPT, speaking on myofascial release and Dry Needling, Ellen Smith: Meet Maggie the Service Dog and learn what a service dog can do for you, Stuart Smith, speaking on the role of a caregiver with tips on caring for yourself while caring for another, and Bill Van Ollefen, MBSR, C.M.I  and Valarie Fosterfrom CT speaking about “Pathway to Mindfulness” For more info contact Ellen Smith at


September 18th Marfan/EDS New England/MA Joint Get together on September 18 at Children’s Hospital Waltham (9 Hope Avenue).  Join us for some good food and good company-a real family reunion type atmosphere.  It most likely will run from 2 pm to 5 pm as we have in past years.  (more details to come) Contact Jon Rodis for more information –


September 24th RI EDS Awareness and Support Group Meeting 2pm-4:30pm – Warwick Public Library LARGE Meeting Room 600 Sandy Lane Warwick, RI 02886. Special meeting about nutrition and gardening with two guest speakers!