Next Meeting: January 28th 2017

Happy New Year 2017!

Our first meeting of 2017 kicks off with a planning session for the year ahead. This will be a workshop style meeting; we want your input! We will be asking our members what speakers they would like to have in 2017. We will also talk about the different conferences happening in 2017, plan May awareness events and share upcoming advocacy opportunities. We will be meeting in the SMALL meeting room this month!

Come learn about EDS, make some friends and help us plan 2017 to make it our best year yet!

If you are in the MA/Boston there is a meeting happening this weekend!

EDS New England/Massachusetts Support Group-Joint Meeting-December 11th

Joint Meeting of the Ehlers-Danlos New England/Massachusetts Support Group and the Massachusetts Chapter of the Marfan Foundation

When: Sunday-December 11th-1 PM to 4:30 PM

Where: Children’s Hospital in Waltham-9 Hope Avenue-Deveber Conference Room-Lower Level

-On December 11th , we will hold a Joint Meeting of the Ehlers-Danlos New England/Massachusetts Support Group and the Massachusetts Chapter of the Marfan Foundation.

After some brief updates on past and upcoming meeting and events, we will discuss the status of research projects and initiatives that are ongoing including the status of several new projects/programs that are about to begin.  Once we have concluded this portion of our meeting, we are going to take a break. (around 2 PM)

After the break, we will have our third ‘Share n Care’ program that will be a time for everyone to share anything that has helped improve the quality of their life and or care through the years. We encourage attendees to bring items that they can talk about and share with all our members.

After our “Share-n-Care’ , we will take another short break. (around 2:45 PM – 3 PM) Following our 2nd break, we will have plenty of time for our general session to discuss any topics our members wish to engage in.

Our meetings are a wonderful opportunity to not only learn more about what is going on in the medical and research community but to also meet and talk, share experiences and support one another.

Please RSVP if you are planning to attend to wsalmgcdjm@comcast.net. Also, don’t hesitate to contact us with any questions.

jan17

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