September 8th Ehlers-Danlos New
England/Massachusetts Support Group and MA Joint Get Together
When:
Sunday-September 8th -1 PM to 4 PM
Where: Children’s Hospital in Waltham-9 Hope Avenue-Deveber Conference
Room-Lower Level
-On September 8th , we will hold a Joint Get Together of the Massachusetts
Chapter of the Marfan Foundation and the Ehlers-Danlos and CTD New
England/Massachusetts Support Group .
It’s a purely social event for members of both groups as well as with representatives
from our medical community who care for our members and/or are part of the
Physician Awareness Committees for Marfan, EDS and related disorders. RSVP wsalmgcdjm@aol.com
September 18th The US Pain Foundation -U.S. PAIN AWARENESS MONTH EVENT FREE and OPEN TO THE PUBLIC North Providence Library
-Kathleen Muldowney, PT “What Are the Benefits of Manual Physical Therapy?”
-Sheryl McKanas, Founder and President of Thrive Tape “The Benefits of Using Far Infrared Kinesiology Tape”
-Ellen Lenox Smith, Co-Director of the Medical Cannabis Program for the U.S. Pain Foundation “Using Cannabis Without Smoking”
-Shaina Smith, Director of State Advocacy and Alliance Development for the U.S. Pain Foundation,”Getting Empowered Through the U.S. Pain Foundation”
Contact: Ellen at ellen@uspainfoundation.org or 401-474-0115
September 26th Social Meet-Up At Not Your Average Joe’s Warwick Location Time: 4pm to 8pm
Join us for a social meet up! We will be meeting at Not Your Average Joe’s in Warwick, 15% of our bill will go to the Marfan Massachusetts Chapter! No purchase necessary, if you are unable to eat or drink please feel free to join us for conversation! **Attendees are responsible for paying their bill***
September 28th RI EDS/CTD Awareness and Support Group Meeting 2pm-4:30pm Location: Warwick Public Library 600 Sandy Lane, Warwick RI Krista Brack will give a brief presentation on tips for the home and hobbies. Krista will also share tips for travelling and share resources for different traveling methods to help prepare for the Holidays.
October 12th RI EDS/CTD
Awareness and Support Group Meeting 2pm-4:30pm Location: Warwick Public Library
600 Sandy Lane, Warwick RI Special Guest Speaker Sheryl
McKanas, Founder and President of Thrive Tape “The Benefits of Using Far
Infrared Kinesiology Tape”
November 23rd RI EDS/CTD Awareness and Support Group Meeting 2pm-4:30pm Location: Warwick Public Library 600 Sandy Lane, Warwick RI
SAVE THE DATE – CONFERENCE SEASON 2020
Rare Disease Week on Capital Hill – February 25-28th Washington DC
Ehlers Danlos Sociaety Annual Conference July 9th-12th Arizona
Marfan Foundation Annual Conference July 9th-12th Boston
TO STAY UP TO DATE ON LOCAL EVENTS CHECK OUT THE EVENT CALENDER – http://teamup.com/ksef9b75cbb080a6de/