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Next Meeting March 12th

March 12th Meeting


This meeting will be ONLINE!​

Join by computer audio or by phone

+1-408-418-9388 Access code: 255 629 29648

Tethered Cord Talk with Ellen and Kerry:

March Meeting about Tethered Cord – This meeting will have two speakers, Ellen will start the meeting off with a talk about her experiences with Tethered Cord syndrome. Kerry will then share her experiences with tethered cord and dealing with a re-tether.​

There will be a Q&A portion after the talks and then we will open the meeting up to group discussion inviting our members to share their own experiences with Tethered Cord Syndrome.​

Members are encouraged to listen to the recording on our website from the group Tethered Cord Panel we did in 2016 ​

Online September Meeting



1-408-418-9388 Access code: 2558 547 6842

Join by phone or computer.

We will be having a group discussion, topics include –

September is Pain Awareness Month!

It is also Chiari Malformation Awareness month!

For Pain Awareness Month we will be talking about adaptive devices that make life easier with chronic illness

I’ll also be sharing a Flare-Up’s Action Plan worksheet.

This will be posted tonight for anyone looking to print it out before the meeting.

Would you like to share an adaptive device you love? Have a can opener that changed your life? Let us know! We’d love to hear what you are doing!